Needles at home...

Yesterday we had another intensive meeting with the endocrine team to talk about Cooper's blood sugars. Long story short, they are "pretty sure" that he has steroid induced diabetes now. Meaning once he gets off his steroids, this issue "should" go away. He will have his blood drawn on Tuesday at the same time he gets his next round of chemo to check for markers in his blood for diabetes but we won't have those results for another week.

We know "just enough" to be dangerous and have lots of questions (and fears). My wonderful sister-in-law provided us all the things to ask and look for with our meeting. Grateful to have extra support on that end! My brain is on overload with more new medical information though, I just so desperately want a week of steadiness and very doubtful that will happen.

Cooper's morning looked like this...

7:30- Woke up (STARVING), when they said the steroids would make him hungry they weren't kidding!

7:35- Prick his finger to get his blood sugar level before eating anything and he was okay with that thankfully because he wanted to EAT.

8:00- Ate SIX eggs, 2 pieces of toast, apple sauce, a salad with olive garden dressing (for breakfast?!), I guess he really is serious about building his lineman body lol.

9:00- Took his 5 pills and his liquid medicine (which he says tastes awful!)

And then the needles. We put a CGM on his arm that can monitor the blood sugars without us having to prick his finger so many times. It basically gets stapled onto his arm but he did really well with it! Then, David gave him the shot.

Experiencing giving our 9 year old his first shot of insulin is not something we thought we'd ever have to do . David is the champ and willing to step up and do them when I am just too terrified to. It's not easy for him either, he hates watching his son having to endure all of these complications knowing we can't do anything about it. It sucks, like a lot.

Want to know how we bribed him to do that? He REALLY wanted Taco Bell burritos and a quesadilla (at 10am!). So of course, that's what he got. It was a traumatic moment for all 3 of us, like so many other moments, but we made it through. Only to know we have to do it again tomorrow.

10:30- His buddy Brexy stopped by to say hi and drop off the sweetest things. He's basically been like a brother to Cooper and they've known each other their entire lives, quite literally. It was nice to see a smile on Cooper's face after the morning he had.

Best case scenario is we do this for the next 2 1/2 weeks while he is on this much steroids and then he can be done with it. Worst case scenario, he has markers for diabetes and this whole cancer event has thrown him into active diabetes and now this is a forever thing. Please pray this is for a short period of time!

Outside of all of that, his main symptom right now is just being SUPER tired. He probably takes somewhere between 3-4 naps a day at the moment. Looking forward to getting our energetic boy back. For now, rest all you need sweet boy, your body is FIGHTING!